In this case, and in any case going forward, the metrics used to decide what’s in the best interest of a child have precedent in the way decisions are currently made about things like genetic testing for children. Technically, it is possible to test a fetus for conditions that will appear later in life. But those options aren’t generally offered to parents, and that testing isn’t done on babies or fetuses. Why? Consent, says Ormond. “For anything that doesn’t have immediate medical import, we try to defer as much as possible,” she says. That means prenatal or early onset genetic testing generally isn’t done for conditions that manifest in adulthood, such as Huntington’s Disease. At the time they do manifest, the thinking goes, the adult person will be able to make informed decisions and provide consent for how to manage their condition. Also, how would knowing early in life that they faced a debilitating condition later help someone? That knowledge hanging over their head is itself a harm.