Researchers created Open Humans after nearly a decade of work with the Harvard Personal Genome Project (PGP). The PGP collected DNA from thousands of people for use in studies, and made much of the data available to the public in the process. “Over the years we had a lot of researchers come to us and say, ‘I want to recruit your participants into my research study because they have this amazing data,'" says Jason Bobe, now the project director for Open Humans. The PGP helped set up the partner studies on the condition that the scientists share the results with the participants and with PGP--an uncommon practice in a field where patient data is closely guarded and cloaked in anonymity. The data sharing was helpful to the Harvard project, which wanted as much complete information as possible, and to the participants who liked to know their own outcomes after they participated in a study. “The problem was that there was no platform available for the individual who signed up for multiple studies to be able to manage their data and create a longitudinal research profile,” Bobe says.